Thursday, October 23, 2008

Thursdays stink

Stella had her weekly bone marrow biopsy/ lumbar puncture/ intrathecal dose of chemo this morning, all while under sedation.  It went well, and they get it done quickly in a relatively comfortable setting, but that doesn't make it any less scary for a 7-year old.

She has been remarkably brave overall, and has made it clear to us that she wants to know the whole truth all of the time.  She is way too smart to deceive, even with good intentions.  She did not like waking up from the procedure with a big Band-Aid over the injection site on her lower back, and liked it ever less when it started to feel sore.  So lesson learned.  Better to deal with a little extra anxiety from her beforehand than resentment afterward.  We'll all get better at this particular routine, as it will be repeated over the next 6 weeks (then restarted 6 weeks after that).

Getting out of the apartment early in the morning was a challenge, too.  Lucky for us, my sister was able to come over at the crack of dawn and take care of getting Zoe--for whom we are working hard to give all the attention she needs--to preschool.  Thanks, Aunt Becca, for all the pinch-hitting.  

3 comments:

  1. I am so sorry that Stella has to endure this worry and pain. But I'm sure it helps her so much to be surrounded by such an abundance of love: her extended family who adores her and is there for her and Zoe at a moment's notice, and parents who are really listening to and respecting her needs as you all learn to navigate this new road together.

    Thank you so much for keeping us posted on how things are going.

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  2. Adrienne and Adam,
    Our thoughts are with you and Stella through this scary time. Our friend's daughter was dx'ed with ALL when she was 4 and now is 10 and in perfect health.
    I've worked with some pediatric oncology patients in the past and was always struck by how the kids really are able to get past all the poking and prodding and side effects. Since, they don't have the burden of worrying if treatment is working (like you guys do), they just concern themselves with normal 8-year-old girl stuff anyway.

    Hang in there.
    Hugs to all from Carina and Steve DeCroes

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  3. Oh, this is so hard to read. I'm so sorry for poor Stella that she has to go thru this. And such a smartie to boot! We love her, love her, love. And we love you guys.

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